Current projects

UTS genetic counselling researchers are leading and collaborating on impactful research projects relevant to all those involved with, or affected by, issues concerning genetics and genomics

Our work focuses on understanding and improving the experiences of patients and families, as well as ensuring ethical practices in genomics. Current projects include those funded by the Australian government Medical Research Future Fund :

NurtureNextGen: Supporting parents of children with genetic neurodevelopmental conditions

Previous research has identified opportunities to improve experiences for parents of children with neurodevelopmental conditions as they learn about their child’s condition and engage in prognostic conversations with clinicians.

Our research project seeks to co-design a digital tool to better equip parents to receive balanced, strengths-based information about their child informed by the lived experiences of other families.

NurtureNextGen is funded through the Medical Research Future Fund: Consumer-Led Research Grant Opportunity. Phase one of the three year project commenced in January 2025.

The project is led by Dr Erin Turbitt

Want to learn more? Email us to find out more about NurtureNextGen: NurtureNextGen@uts.edu.au

Acknowledgement of Country

UTS acknowledges the Gadigal people of the Eora Nation, the Boorooberongal people of the Dharug Nation, the Bidiagal people and the Gamaygal people, upon whose ancestral lands our university stands. We would also like to pay respect to the Elders both past and present, acknowledging them as the traditional custodians of knowledge for these lands.